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Assessing the likelihood of hereditary angioedema (HAE)

Welcome!
Take a short survey to determine the likelihood of hereditary angioedema (HAE).
Answer a few questions and get a preliminary result.
Instructions:
Answer the questions as truthfully and in detail as possible.
Based on your answers, a risk assessment will be formed, which you can discuss with your doctor.

Start survey

icon3The results of the symptom matching tool are not a medical opinion and do not replace the advice of a doctor. This tool is intended for informational purposes only, to provide additional information about hereditary angioedema (HAE) and your individual risk of having it. In the event of a medical emergency, seek emergency care immediately.

Resourses

  1. Lopez M A. Hereditary Angioedema Epidemiology. Rare Disease Advisor. (2022)[online]. Link: https://www.rarediseaseadvisor.com/disease-info-pages/hereditary-angioedema-epidemiology/.
  2. Chong-Neto HJ. A narrative review of recent literature of the quality of life in hereditary angioedema patients. World Allergy Organ J. 2023 Mar 20;16(3):100758. doi: 10.1016/j.waojou.2023.100758. PMID: 36994443; PMCID: PMC10040818. Link: https://pmc.ncbi.nlm.nih.gov/articles/PMC10040818/.
  3. Bork K, Anderson JT, Caballero T, Craig T, Johnston DT, Li HH, Longhurst HJ, Radojicic C, Riedl MA. Assessment and management of disease burden and quality of life in patients with hereditary angioedema: a consensus report. Allergy Asthma Clin Immunol. 2021 Apr 19;17(1):40. doi: 10.1186/s13223-021-00537-2. PMID: 33875020; PMCID: PMC8056543. Link: https://pmc.ncbi.nlm.nih.gov/articles/PMC8056543/.
  4. Busse PJ, Christiansen SC. Hereditary Angioedema. N Engl J Med. 2020 Mar 19;382(12):1136-1148. doi: 10.1056/NEJMra1808012. PMID: 32187470. Link: https://pubmed.ncbi.nlm.nih.gov/32187470/.
  5. Doctor discussion guide. (2022). Available at: https://th.knowhae.com/sites/default/files/2022-03/discussion-guide.pdf [Accessed 12 Nov. 2024].
  6. Henao, M. P., Craig, T., Kraschnewski, J., & Kelbel, T. (2016). Diagnosis and screening of patients with hereditary angioedema in primary care. Therapeutics and Clinical Risk Management, 12, 701. https://doi.org/10.2147/TCRM.S86293.
  7. Shams, M., Laney, D. A., Jacob, D. A., Yang, J., Dronen, J., Logue, A., Rosen, A., & Riedl, M. (2022). Validation of a suspicion index to identify patients at risk for hereditary angioedema. Journal of Allergy and Clinical Immunology Global, 2(1), 76–78. https://doi.org/10.1016/j.jacig.2022.08.009.
  8. Stuart, A. (2023). Hereditary Angioedema: Causes, Symptoms, and Treatment. WebMD. Available at: https://www.webmd.com/skin-problems-and-treatments/hereditary-angioedema.
  9. Maurer, M., Magerl, M., Betschel, S., Aberer, W., Ansotegui, I. J., Aygören‐Pürsün, E., Banerji, A., Bara, N., Boccon‐Gibod, I., Bork, K., Bouillet, L., Boysen, H. B., Brodszki, N., Busse, P. J., Bygum, A., Caballero, T., Cancian, M., Castaldo, A., Cohn, D. M., & Csuka, D. (2022). The international WAO/EAACI guideline for the management of hereditary angioedema—The 2021 revision and update. Allergy, 77(7), 1947-1980. https://doi.org/10.1111/all.15214.